I'm of two minds about situations like this.
I feel sorry for the child and wish a cure.
On the other hand, I see that people breeding these diseases through genetics should consider letting nature take its course to keep it out of the gene pool.
The more we save those who would not normally survive, the more we keep diseases and deformities in the gene pool.
It's a dilemma.
What do you mean by breeding these diseases through genetics? Do you mean the parent or parents had Spinal Muscular Atrophy Type 1 ?